Thursday, July 14, 2016

Friday? What am I?

Maybe I'll find out Friday.

In March of this year some of my blood was sent from the University of Michigan to be researched at the University of Chicago.  It was to be used for an Exome Panel to attempt to diagnose the cause of my Cerebellar Ataxia. I was given the generic diagnosis in 2013.  Don't quote me on this, but I think they said there was about a 60% chance of finding out.  I've had all the test, the pokes and the prods, that could yield a result (other than genetic) but they all came back negative,  This panel is probably my last hope for knowing.  I know this won't result in a cure for me but it may help someone in the future.

Knowing, either way, may change how I attempt to cope with and delay the symptoms and it may not.  Currently, I'm attempting to lose weight and exercise.  I've done a few rounds of PT and I definitely saw changes for the better in my balance, coordination and walking.  I've tried to find more ways to exercise and get to a healthy weight because I want to have the best opportunity to stave off loss of mobility as much as possible.  My wife (who has been such an incredibly selfless helper through all of this) has started us on a lifestyle shift to eating smaller portions and getting us away from our pop addictions.

The following weekend I should get my trike!  This is extremely exciting for me as it will allow me to be more active with my girls!  As of right now I can only watch the majority of their activities.  They learned to ride two wheel bikes this spring and now they're all over on those things all the time.  Once I have the trike we'll see how well the old man can keep up with them.  We're getting my wife's bike fixed up too, so we can all ride together.

I haven't posted anything for over 15 months and it was extremely sporadic at best.  I hope to post more often.  Typing this stuff out helps me maintain my weak typing skills, which probably helps my motor skills.  I'm also realizing it helps me remember where I'm at mentally and physically at certain times of my life.

On that note, I think I should make a goal...  starting with this post, 7-14-16, I will post a minimum of once-a-month.  So here's July, 247.


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