Learning to Move?

This is a bit of a rabbit hole for me.  Follow me if you will...can?...will.  I was diagnosed with cerebellar ataxia roughly three years ago.  In that time I've made a few changes, checked in to exercises, food changes, supplementation, blah blah blah.  I've looked into quite a few things that I never would have before.

Recently, I've been seeing increased information about movement coaches and specialist.  I enjoy watching mixed martial arts and the new wave is these movement coaches and such.  They use the knowledge these coaches give them so they don't waste movement which would cost themselves stamina and power.  With the problems my fellow ataxians and I have with movement, can it help us too.

I've looked into some of these people search engines and through YouTube and the like; and I wonder how it can be applied to ataxia patients.  I've seen first hand the benefit of physical therapy on my condition.  I've had a couple different PT's (neither of which had a specific understanding of ataxias), and just strengthening and static balance work has helped me increase my performance on physical test I get at U of M.  I think this "Movement" movement could help with my dynamic balance.  Over the next few months, I'm going to work out a program and a way to test its efficacy.  Short of a kinesiology class I took in college, I have no information regarding the workings of the human body. I plan on basing my program on strength training, moving, and balance workouts/exercises I research. I am still able to work and I have a family at home, so whatever I choose to do, it will need to take time limitations into account.

I'm going to post my plans and my results periodically on here and we'll see where it goes.  If anyone reading this has suggestions of plans, videos, programs, that might help in this endeavor, please leave that information in the comments.  Thanks!

Ride Time

Tomorrow is TerraTrike Riderfest in Grand Rapids, Michigan.  This will be my first group ride/event. I am looking forward to it. My goal is to complete all thirteen miles of the course.  I've only just started riding and maybe this will lead to more events in the future.

Because of my stability issues, caused by my ataxia, I haven't participated in anything remotely close to this in a long, long time.  As a kid and up to about 5 years ago I played a ton of sports and activities like golf, baseball, basketball, street hockey, blah blah blah.  But now, because of my trike, I am able to do something more active again.

My wife will be joining me on this ride (she'll be on an upright bike but...) and possibly there will be others there with movement disorders, maybe even with ataxia.  We'll see. I'd love to be able to transfer this more into helping the small but way too large ataxia community, but let's get through this first "challenge" and go from there.